Finding a cure for sarcoma is possible.
After a rare form of cancer took the life of Steven Vanover in 2015, his friends and family formed this organization to honor Steven’s legacy of brightening the lives of others. In a short period of time, it has transformed into something much greater.
Lack of options
Facing limited treatment options for his rare form of cancer, Steven traveled to New York to see doctors at Memorial Sloan Kettering Cancer Center (MSK) and had planned to undergo surgery there. MSK is one of the few places in the country where he could get advanced treatment for desmoplastic small round cell tumor (DSRCT), a rare form of sarcoma that often affects young adults and children. Unfortunately, due to the aggressive pace of his disease, he was not able to undergo the surgery he needed out of town.
To this day, there are limited treatment options for sarcoma because there is a lack of funding for rare cancer research. And the treatment options that do exist may require sick patients to travel far and wide, which can be detrimental to their quality of life.
Big differences start with small ideas
We’re here to make up the difference through community engagement and fundraising. While the government and private sectors fund research for more common types of cancer—noble efforts that we support—we are the organization raising funds to find a cure for sarcoma, a rarer and underfunded cancer.
What started as a way to honor our dear friend has quickly morphed into an organization that’s making a national difference. To date, the Steven Vanover Foundation is the largest funder of a Phase II clinical trial for DSRCT—the only one of its kind.
Ultimately, our goal is to help find a cure for sarcoma by partnering with scientists, researchers and health care organizations that share in our vision. It is our hope that one day in the near future, a sarcoma diagnosis comes with a sense of hope.
We need you
It will take a village to find a cure for sarcoma, and we’re just getting started. But we believe it’s possible. And we will keep working until we get there.
We send our deepest gratitude to those who have supported us since our inception, and ask you to join us in the fight.